Choose Your Own Adventure

In life, we are faced with many choices.  Some of them are easy to make, and some seem utterly impossible.  When it comes to the choice of Life or Death, how do you choose?

ANCIENT HISTORY TO MODERN DAY
Euthanasia (from Greek: εὐθανασία; “good death”) may have been standard practice long before the Greeks gave a name to it, or Socrates sipped his hemlock, and it’s clear that it was not unique to that region.  The Japanese practice of Ubasute (abandoning the elderly or infirm on a mountain to die), Serbian Lapot, the Norse/Germanic Attestupa, and on and on…

In God on Trial, Rane Willerslev describes the practices of the Chukchi People of the Russian Arctic:

Among the Chukchi, human sacrifice is, as a matter of ethnographic fact, a customary practice. In the early ethnographies, it goes under the name of “voluntary death,” and it involves the killing of a close family member—often ill and aged—who expresses a wish to die (Borogas, 1904).

Willerslev argues that this Chukchi practice is really just human sacrifice, equating it with the story of Abraham’s binding of Isaac in the Hebrew Scriptures. His basis for this argument is that they are both based on faith (and/or trickery), and therefore a sacrifice, not a mercy killing.

The history of these ancient practices in our subconscious, along with our modern, societal psychological hangups around aging, have given rise to a plethora of dystopian fantasies revolving around this premise: Logan’s Run, Star Trek: The Next Generation, Stargate AtlantisBoomsday, to name just a few.

For “assisted suicide” (voluntary active euthanasia) and its debate, one needs only search the internet for the controversial Dr. Kervorkian.

The argument for or against legalized euthanasia could (and does) fill several million articles and blog posts, and the ethics of it leads to extremely personal and volatile discussion, but that’s not what I’m here to talk about.  I am writing about voluntary passive euthanasia, as it has popped-up a lot in my life in this last year.

VOLUNTARY DEATH
 Life’s like a movie: write your own ending…

SUFFERING:
My husband’s grandmother was either 103 or 106 when she died (her birth records were lost in a fire, and being a lady, she never told her true age).  She survived 2 world Wars, 2 husbands, and witnessed the dawn of 2 centuries.  Towards the end, she was very frail, and depended on others to take care of her.  Her sight and hearing were failing, and it was extremely hard for her to get around.  Many times, she was heard  lamenting “Why won’t God take me?”

CHOOSING:
A friend of mine just lost her father. He was 98 years old. A war hero, a beloved doctor in his community, and a widower for over 30 years, his last few months were filled with friends dying, subsequent bouts of depression, and infections that caused balance issues.  One fall resulted in a broken neck that, at his age, would never heal. It required wearing an uncomfortable neck brace 24 hours a day, taking away his comfort and his ability to drive or to take care of himself.  When they found a possible melanoma on his back, he decided not to get it biopsied. “If it’s cancer, so what?” he said. “I’m 98 years old. Why fight it?”  His doctor and his daughter (a doctor herself) agreed.  When an infection caused him to be bedridden, he made the conscious decision to stop fighting altogether. He stopped eating and was given basic palliative end-of-life care so he could be comfortable. He passed away on his own terms, and in his own time, surrounded by his family.

A NEW TREND?:
Currently, a close family member and a friend’s mother (both in their 80s) are going through eerily similar circumstances. Both have different forms of cancer that have metastasized and entered their lymph nodes.  In both cases, radical radiation or chemotherapy might help, but the prognosis is not clear, and the treatments would come at a high cost (both physically and financially).  Both have decided not to undergo these treatments.  They both know the consequences, but have weighed their options and decided on quality of life over quantity of life.  Understandably, their families are devastated, but having witnessed countless others suffer during treatment only to succumb to the disease, they are (reluctantly) accepting of this decision.    

I wonder if I would make the same decision, or if I could allow someone close to me to make that decision without a fight.

PERSONAL CHOICE:
My parents both died of complications from Alzheimer’s Disease.  Odds are, if I live long enough, that I will face that same dreadful curse.  Should that time come, I honestly don’t know what I would choose.  Practicality says “Think of the pain (to myself) and the burden of care (to my family, to our finances) that I could avoid.” Human Nature reminds me to be scared of Death, and Hope wants to hold out for a cure that could come down-the-line.  For me, there is the added burden that Alzheimer’s is a slow and drawn-out demise.  So I would be faced with the added question of “When would be the right time to go?”  I think that would be more important than the how.

“To die will be an awfully big adventure.”
― J.M. Barrie, Peter Pan

MISC. RELATED LINKS:
Cost of Treatment in Medical Decision Making?
The High Cost of Dying
Cost Analysis of Medical Assistance in Dying (plus this article)
The High Cost of Cancer Treatment – AARP
When Fighting Cancer isn’t Worth It
Alzheimer’s Death – Being Patient
Gene Wilder’s Wife on Caring for Someone with Alzheimer’s
Robin Williams – “The Hardest Role of His Life”
6 Questions to Ask Before Writing a Living Will


I’d love to hear your thoughts on this.  Do you have any experience with a loved one choosing death over suffering?  Do you judge those that consider it (voluntary euthanasia)?  Would you, yourself, consider this choice if the situation arose?  Could you choose for someone that couldn’t choose for themselves (involuntary euthanasia)?  Do you have a DNR (do not resuscitate) order or a Living Will?

 

EDIT: I promise, the next post will be something happy and uplifting.
I put that Muppet Movie video in there to lighten the mood a little bit…

Please don’t…

… finish my sentences.  I am 100% sure you do not know what I’m going to say.  It makes you look pushy, or bored with the conversation, or just like an asshole.  I understand that people do this to impress upon you that they have a superior intellect and that they are not only following-along with what you are saying, they already know everything about it.

… yell at me when I’m trying to help you.  If you’ve asked for my assistance and I am giving it to you, don’t take your frustrations out on me when I can’t understand what you are asking for.  I understand you are frustrated and angry with yourself and your situation, but the person helping you should never have to deal with your misdirected anger.

… wait in front of the train door when people are trying to get off.  You will get on, but only if you let us make room for you by exiting the car.

I don’t want to be negative, but there are certain behaviors that make me question how people have gotten this far in their lives without being told that these behaviors are unacceptable or rude.  I have already railed against self-important, blameless people, but it seems to be becoming the norm to be someone who is so outwardly self-centered, yet (ironically?) the exact opposite of self-aware.  Perhaps I am blessed to have had the time, resources, and opportunities to examine my own life choices – my temperament, my faults – maybe most people do not have that luxury?

Know thyself not Know thy selfie.

Is it because no one has challenged them up to this point?  Is that why they continue (or even start to develop) these behaviors?  Why is it tolerated in today’s society?  Are we so beaten-down by the daily news, or numb from being inundated with social feeds of people excelling (or, with schadenfreude: failing) in their lives?

i’d love to hear your thoughts.

The “Not My Fault” Generation

Like Beetlejuice, Bloody Mary or the Candyman, simply speaking their name can conjure-up an assumed attack, so I won’t use the “M” word.  Besides, I don’t have to, you knew who I was referring to just from the title, didn’t you?  Take a moment to think about that, whichever generation you may belong to.

Generations are always at odds about something.  From the dawn of time, the older generations think the younger are lazier or less (insert anything here) than they were.  The younger generation thinks the older generation is behind-the-times or too conservative.

Full disclosure: I am from Generation X (the latter end, though too early to be an Elder Millenial).  Am I supposed to blame the Baby Boomers for everything that is wrong?  Growing up, we heard a LOT about the Boomers, presumably because there were so many of them and because they held the power of the media at the time.  Some started young and had large families, and others had careers before they had children, so our generation spanned a wide range of older groupings and younger only children.  We also had a significantly larger number of us raised in single parent homes than the generations before us.  Personal observations have taught me that children from big families are polarized when it comes to raising their own families, depending on their own experiences.  Some had wonderful childhoods and want the same large unit they had.  Some had less-than-happy childhoods, so they limit their children to 1 or 2.  We definitely had a drop in fertility rates and statistically, the average family is still getting smaller.

Infertility treatments became a big business on the cusp of the generational switch in the late 70’s/early 80s, and continues to grow with seemingly no end. As technology improved, families should have been growing for GenX, not shrinking.  Is it because our generation waited to have children until their careers and homes were established?  Later (aged 35 or older) pregnancies come with increased risk and high medical cost, especially if treatment is needed, so late-in-life families tend towards sole child households.  These children are usually referred to as “miracle babies.”

It should come as no surprise that these miracle babies would be raised to be overprotected, overpraised, and sometimes overly criticized.  They represent a significant, and often painful, physical and financial investment, and are sometimes treated as such. Though not a new concept, GenX perfected Helicopter Parenting.  Can we blame them for an assumption of privilege or self-entitlement?  We have coddled a majority of this generation and done them a disservice when it comes to taking action for themselves or taking responsibility.

This report from the Pew Research Center shows that, financially, they are exceeding previous generations at their age, yet the media tells us that they can’t get jobs, or will not work because they won’t take jobs that are beneath them.  I have witnessed young job applicants that assume they are entitled to a senior-level salary directly out of college.  Perhaps schools need to teach more about starting salaries and advancement opportunities instead of teaching them that their career will start immediately.

Did we create this? Are we to blame for their Me Me Me behavior? Technology? Social Media?

To go back to this piece, the writer comes right out and says:
Stop blaming us for our issues when it was partially the fault of those who came before.

I will give him credit for including the word “partially,” yet there is still never an admission of his own fault.  It’s alluded to, but never addressed.

There are a few people here in town from this generation that are very active on social media and treat it as if their ~400 friends are actually millions of followers and that they are significant cultural leaders or celebrities.  You know the type – they ‘like’ or react to their own posts, and write them, as if for Buzzfeed, with leading and vague elements to drum-up interest.  One (let’s call him Jack) recently lost his job because he posted a libelous fake review on Yelp for another business, calling the owner homophobic, among other things.  He thought this was acceptable behavior because the business owner had given him a fake review that brought down his personal rating (rather than dealing with it the mature way).  The business owner told Jack’s boss about it, and the boss fired Jack (rightfully so) for the behavior and its reflection on her business.  Jack took to social media to tell his side of the story, pleading with his followers not to be mad at his former boss, blaming the other business owner, and taking none of the blame himself.   Now, Jack is licensed by the city.  He, again, went to social media to publicly accuse the licensing department of discrimination (he is bisexual) because they were refusing to renew his license.  Once again, he is not to blame for anything – everyone else has done this to him.

I have worked with two different strong career women (both technically of Baby Boomer generation) that used various methods to conceive a late-in-life first (and only) child.  Both of them treated their daughter like princesses, and both young ladies are now in their 20s, extremely sensitive to any minor inconvenience, and utterly spoiled.  I had known one of them since she was a baby, and I watcher her mother fawn and bow-down to this child (the few times a day she wasn’t with the nanny) to the point that the teenage daughter was essentially in control of the relationship and had her every whim seen to.

I’d like to think that each generation learns from the two before it and the one after it.  GenX is taught by the Boomers in response to what the Boomer’s saw were our Grandparents’ mistakes.  GenX then teaches this generation based on what we saw were the Boomer’s mistakes, and we grow based on what we learn in this ‘experiment’ of raising a next generation.

How will this generation react to the “Z Generation” when they come of age?  Will GenZ even come of age with Anti-vaxxers, multiple wars, drug-resistant infectious diseases, global warming, pollution…

Well, that’s depressing, so here’s a tongue-in-cheek ending:

“Get off my lawn!” will soon evolve into “Get off my semi-biodegradable, sustainably-dyed astroturf-made-of-89%-post-consumer-waste!”

What are your thoughts?